Saturday, April 1, was the eighth annual Super Eliza 5K was extra special. This year, the event to help fund research to cure Sanfilippo Syndrome crossed the impressive mark of having raised more than $100,000 collectively.
The USC Pediatric Pharmacy Advocacy Group has generously hosted this event each year and helped with volunteer help.
Thank you to event sponsors Pediatric Mobility Innovations, Excell Refrigeration of SC, and BlueCross BlueShield of South Carolina.
“Thank you to all who came out who love and support Eliza and this mission to #CureSanfilippo for children. We are inspired by your support and energy,” said parents of Eliza, Glenn and Cara O’Neill, in a Facebook post after the event. “Again our spirits are lifted, thanks to you!”
“Thank you to the brilliant gene therapy scientists Drs. Haiyan Fu and Doug McCarty for coming down from UNC Chapel Hill. And thank you to the other Sanfilippo families in attendance. Little adorable Spencer Laughlin and parents Erin Laughlin and Shea Laughlin. And funny and smart Abby Grace and parents Wendy Baucom Ferguson and John Ferguson.”
Proceeds from the annual Super Eliza 5K benefit Cure Sanfilippo Foundation, a 501(c)3 nonprofit dedicated to advocating and funding research to bring about treatments and/or a cure for Sanfilippo Syndrome. Cure Sanfilippo has funded 35+ research grants around the world which has helped three clinical trials get underway, to date, treating children with Sanfilippo Syndrome. The Foundation creates and explores innovative and breakthrough research to ensure multiple promising paths are being explored in the effort to save children and better their quality of life.