Top-5 lists” are an interesting way to see what is at the forefront of people’s minds.
Here’s a list of the top-5, most-visited pages on Cure Sanfilippo Foundation’s website, according to data from Google Analytics and Bing Webmaster Tools.
#5: “Logan Pacl’s Meet the Family” page
In February 2021, Logan Pacl’s mom Noelle began sharing their life with Sanfilippo on the trending social platform TikTok. Their candid and insightful videos quickly attracted viral attention. @Love_Logan07 now has more than 2.3 million followers on TikTok. And Logan’s popularity has drawn many people to search for more information about him and Sanfilippo Syndrome, bringing visitors to his family’s Meet the Family page on the Foundation’s website.
#4: “Testing for Sanfilippo” page
When families are wondering if their child has Sanfilippo, this page details the exact testing options their child’s primary care provider can order to screen for Sanfilippo. It includes detailed information about each test and considerations based on age. There are physicians can use to easily order the tests or obtain additional information.
#3: “Every Family Has a Story: Meet the Families” page
Since the Foundation was established in 2013, more than 100 families from around the world have chosen to partner with the Foundation and its mission as a partner-family. Each of them share their personal stories on their own Meet the Family pages. The Every Family Has aStory page aggregates all of the families in one place and enables people to engage in mulitple families stories of life with Sanfilippo.
#2: “What Is Sanfilippo” page
This is a critical page of information for families of children with Sanfilippo Syndrome. This clear content is especially important for families of newly-diagnosed children. It walks through the top questions people have about Sanfilippo, such as what causes Sanfilippo, what are the symptoms, what is the prognosis, and what research is working towards a cure.
It’s not surprising that the Foundation’s digital “welcome mat” for its web content is one of the most-popular places people land. From the homepage, people can find information about Sanfilippo Syndrome, read the personal stories of partner families, donate in support of the Foundation’s mission, shop the online store, and much more.
Cure Sanfilippo Foundation is proud to provide comprehensive and easy-to-understand information about life with Sanfilippo, details on ongoing research to give these children a better quality of life, and several opotions of how people can help.