Podcast Episode 9: Anakinra Trial update; Collaboration with UNC; other research updates; + more

December 21, 2021
A Close Look - Episode 8 - Nov 15 - Episode Cover

The Dec. 17, 2021, episode of the Foundation’s “A Close Look at Sanfilippo” podcast spends 10 minutes (and a little more in this episode) diving into five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment.

In this episode n this episode Dr. Cara O’Neill, Chief and co-founder of Cure Sanfilippo Foundation, gives a year-end update on some important projects including the Anakinra clinical trial underway, funded fully by kind supporters of the Foundation.

She goes on to talk about the UNC collaboration, other promising research, international collaborations, advocacy projects like addressing educational challenges and global clinical guidelines.

Dr. O’Neill then talks about the Foundation’s focus in 2022.

Foundation President and co-founder Glenn O’Neill closes the episode talking about the Foundation history and impact from viral videos, and introduces the new Help Simon video launched.

This Episode’s Links

Watch & share Help Simon: HelpSimon.com

Participate in AllStripes platform: https://www.allstripes.com/sanfilippo

Listen to the Podcast

Watch or listen to this episode of “A Close Look at Sanfilippo” at your convenience on Facebook, Instagram, or YouTube and all major podcast services, such as Apple Podcasts, Spotify, and Amazon Music.

A Close Look At Sanfilippo” is a regular 10-minute podcast from Cure Sanfilippo Foundation. Each episode spotlights five hot topics in the pursuit of finding a treatment and giving children with Sanfilippo more good days. And how the Foundation is involved and how it accelerates the mission to get an FDA-approved treatment for the children.

Each “A Close Look At Sanfilippo” podcast is a way for partner families, donors and supporters, researchers and clinicians, and industry partners to hear directly from us. One that you can listen to at your convenience.

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