The Oct. 6, 2021, episode of the Foundation’s “A Close Look at Sanfilippo” podcast spends 10 minutes (and a little more in this episode) diving into five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment.
In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about the inspiration and “why” behind creating a Foundation podcast; how the Step Up virtual steps challenge is shaping up for 2021 and how you can be a part of it.
He also dives into a recently co-funded research project at the University of Sidney to see if photobiomodulation, which has been explored as a therapy for several other neurodegenerative diseases, could provide multiple benefits in Sanfilippo.
He also breakdown why so much money is needed for disease research and brings attention to the upcoming World Sanfilippo Awareness Day (Nov. 16) and it’s importance to the global community of families of children with Sanfilippo.
A Close Look At Sanfilippo” is a regular 10-minute podcast from Cure Sanfilippo Foundation. Each episode spotlights five hot topics in the pursuit of finding a treatment and giving children with Sanfilippo more good days. And how the Foundation is involved and how it accelerates the mission to get an FDA-approved treatment for the children.
Each “A Close Look At Sanfilippo” podcast is a way for partner families, donors and supporters, researchers and clinicians, and industry partners to hear directly from us. One that you can listen to at your convenience.