The family of Connor Dobbyn created a video time capsule to document the many efforts and many, many kind people it took for the Save Connor campaign to reach $1 million. All to help fund the first-ever gene therapy clinical trial for Sanfilippo Syndrome Type C.
What Sanfilippo Families Need to Know: New Medicaid Work Requirements
Starting January 1, 2027, most states must require certain adult Medicaid enrollees to work, study, or volunteer 80 hours a month to keep their coverage. This comes from a new federal rule (CMS-2454-IFC) issued June 1, 2026. Many parents and caregivers of children...