The family of Connor Dobbyn created a video time capsule to document the many efforts and many, many kind people it took for the Save Connor campaign to reach $1 million. All to help fund the first-ever gene therapy clinical trial for Sanfilippo Syndrome Type C.
Family Friday 2023: The Stoop Family
Hear directly from the Stoop family – Tyler, Erin, Olivia, and Liam!Awareness is a huge part of fighting Sanfilippo Syndrome. With awareness comes caring and understanding, which can lead to support and donations for research that can give children with Sanfilippo...