Uplifting Support Seen on GivingTuesdayNow
Supporters around the world answered the call of “A Cure Can’t Wait” and donated an astonishing $146,202 on GivingTuesdayNow, May 5, to Cure Sanfilippo Foundation.
Thirty-three families of children with Sanfilippo Syndrome participated in the Foundation-led “A Cure Can’t Wait” campaign the culminated on GivingTuesdayNow and are directly responsible for the amazing results. See the families’ campaigns.
“We are completely humbled, and frankly in awe of the kindness we’ve seen for children and families with Sanfilippo Syndrome. Particularly during these times, to see supporters raise up this effort and look to help others during this time is remarkable. It brings inspiration and hope to all of us,” said Foundation President Glenn O’Neill. “You lead by example, and many are watching. Again, we thank you, the families and supporters who participated!”
Work on a Cure Will Continue
Sanfilippo Syndrome doesn’t take a day off, so the Foundation and research to find a cure continues even in these unusual times.
The Foundation focuses on research in all stages of development happening right now, as well as emerging scientific ideas.
“As projects move from early-stage research, to clinical trial, they require significant funding to take each to the next level,” said Foundation Chief Science Officer Cara O’Neill. “People’s generous support is keeping the momentum going and enables the Foundation to support all stages of research.”
See the projects being funded currently by the Foundation because of this generous support. (See Page 11.)
A Rainbow In the Storm
GivingTuesdayNow was declared internationally on May 5 as an emergency response to the unprecedented need caused by COVID-19. Cure Sanfilippo Foundation joined charitable causes from around the world for the global day of giving and unity.
“A Cure Can’t Wait” celebrated the togetherness and positivity that have marked these uncertain times for every person in the world.
Rainbows represent beauty after the storm. Light after darkness. Hope. A symbol of positivity, of the hope for better days ahead for everyone. Hope for a cure for Sanfilippo Syndrome. Which is why the rainbow was used as the central element of the campaign artwork.
It also inspired some fun participation on social as supporters of families around the world were asked to draw a rainbow to share with children with Sanfilippo Syndrome.