We are thrilled to announce that Cure Sanfilippo Foundation is officially in the running for the Chan Zuckerberg Initiative Rare as One funding opportunity.
Rare as One invites patient-led 501(c)(3) organizations focused on a rare disease to apply for a two-year funding opportunity to develop and launch innovative collaborative research networks in partnership with clinicians and researchers.
On July 22, we submitted the application. We feel its a strong application with brilliant new ideas from our Scientific Team.
“This would be huge awareness for Cure Sanfilippo Foundation‘s mission and Sanfilippo Syndrome as a whole,” said Glenn O’Neill, President, Founder, and Father of Eliza (Type A).
“Thank you to the Chan Zuckerberg Initiative for venturing into this rare disease space and realizing the urgent and unmet need for this large community.”
In late August, invitations will be sent to selected organizations to submit full applications.